A site to share the progress of our son, Grayson, diagnosed with Sagittal Craniosynostosis in his 2nd day of life. He underwent surgery on 8-8-08 to correct it. I also post about my exciting adventures as a Stay-At-Home-Mommy to 3 kids.
Friday, June 27, 2008
One Week Old!
I woke up today and could not breathe! MAJOR SINUS INFECTION! I had to go to the ENT and get on steroids. I can’t feed Grayson for 4 hours after taking them. So, I have to feed him, pump, take the pills, and give him the expressed milk in between. I hope these steroids help! I’m so tired though. Grayson is 1 week old today!!!!! I’m off the pain pills too! But, I am able to get out of bed on my own. Yay me! I lost 13 pounds so far.
Thursday, June 26, 2008
Day Six
Today, we had Grayson’s first ped check up. He has gained back 4.5 oz since we left the hospital. He’s only has 3 oz to go to be back up to birth weight. We go back on Thursday for another checkup. He is still eating well. I was able to feed him without the nipple shells today! Maybe I won’t have to wear them! I’m so engorged!!!! It hurts! I had my first nurse in public today. It was so easy with the hooter hider! Chris took me to the mall and I got some nursing bras WITH SUPPORT and some nursing tops. Big accomplishment for me: I shaved my own legs today! Woo Hoo!
Wednesday, June 25, 2008
Day five
I am feeling a little better. I wish I could do more on my own, but it will come with time. I still feel very lumpy! I can’t wait to see how much weight I am left with. Still on pain meds, but Grayson is eating like a champ! He is going in 2-3 hour increments. He is starting to cluster feed though, which scares me. My friend did that and ended up with a breast infection from her body making too much milk thinking she was nursing triplets. So, we introduced the pacifier tonight! He did much better with feedings! He just wanted to suck, that’s all. I’m getting around and moving OK. Still need help getting out of bed and showering the bottom half of me though.
Tuesday, June 24, 2008
Day four
Still sore! I am really swollen too. My ankles are so puffy and my toes look like sausages! My older kids come home today! I miss them so much! Chris has been taking care of the house and doing wonderful! I am so lucky to have him.
Monday, June 23, 2008
Day Three
Sunday, June 22, 2008
Day two
Walked the halls today. It feels better to sit in the chair. I am so tired, but I don’t want to climb in bed and take a nap, or I may not get out of bed! Grayson is still eating well. He spent the night in the nursery and only came in for feedings. They were monitoring his blood sugar levels closely, and requested that he stay in the nursery with them. I need some sleep anyways. We had to supplement 1 oz of formula after a feeding, but other than that, he is doing great!
Saturday, June 21, 2008
The Diagnosis
The hospital pediatrician came in today to visit with me. My Dad was there with me because Chris had to take the kids to a birthday party. She told me that she thinks Grayson has Craniosynostosis. Say what? I've never heard of that. When she described to me what it was, I explained to her that his head was shaped like that because of the way he was trying to come out of my pelvis the day before. She said "I hope I'm wrong, but please go get a 2nd opinion". She told me the only way to correct it was to have surgery. A very invasive surgery. She explained to me how the surgery will happen and what it will correct. She said they will probably want to do it between months 4-6 of his life. So, I am thinking between Halloween and Christmas. But, I am going to get a 2nd opinion. She refers me to someone at Texas Childrens Hospital. I asked her about the helmets that little kids can wear. Could that correct it since it's a mis shapen head? She tells me that the helmets are for children who's head is still soft, and not fused like Grayson's. I plan to go home and google some information about it and see what I can find out.
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